The Acid Maltase Deficiency Association (AMDA) in the USA, one of the members of the IPA, took the intiative to create an International Pompe Day Commemorative Book. This 70+ page Commemorative Book highlights the international activities that occured on the First Annual International Pompe Day at April 15, and will serve as a permanent reminder of how 'Together We Are Strong'!
Books can be purchased for 25 USD, including shipping. However, the AMDA has offered the international community that the first 100 books ordered will be FREE (limited to one book per person)! The books will be available by November 1, 2014. To place your order, please email: TiffanyLHouse@aol.com (AMDA). Please tell your friends, family and other involved in Pompe disease about this book.