Together We Are Healthy
We invite those in the Pompe community to share what works for them. How do YOU Live healthy with Pompe? You can send in a video, or a short summary of how you/your child stay active, what you do for physical therapy, assistive devices you use, and anything else that you think contributes to your “Living Healthy with Pompe”.
The purpose of this new resource is not to say what everyone should do. Healthy Living with Pompe isn’t going to look the same for everyone – our community is too diverse and unique for that to be the case. Instead, the purpose of this resource is to offer support and encouragement for each other by showing the many ways Pompe patients can take steps to become healthier.