The IPA is excited to announce that the first annual International Pompe Day on April 15 2014 was a resounding success!
Patient organizations, individuals, physicians, and industry partners from all over the world participated in recognizing and celebrating our community, and raising awareness of Pompe disease.
The ways in which International Pompe Day was celebrated were as diverse as our patient population, but the underlying theme and message was clear: Together We Are Strong!
The Acid Maltase Deficiency Association (AMDA), the United States Pompe patient organization, is compiling a Commemorative Book of the activities on the first annual International Pompe Day. This book will be available soon – information will be posted on the IPA (www.worldpompe.org) and AMDA (www.amda-pompe.org) websites regarding how to order your copy when it becomes available.