Mr. Uğur Tatlıcı, CEO of UNT Holding and son of the late Mr. Mehmet Salih Tatlıcı  (1931 - 2009), donated 800 Euro's to the IPA in September 2014. The donation was in memory of Mr. Mehmet Salih Tatlıcı  and made through a Charity Fund he founded.

Mr. Tatlıcı had a deep respect for humanity and the Earth. His Charity was set up to provide financial support to organisations that support people with a disease or disability or preserve nature and the environment. The Charity is continued by his son Mr. Uğur Tatlıcı and his wife Nurten Tatlıcı. By doing so the memory of Mr. Mehmet Salih Tatlıcı is kept alive.

The IPA is grateful for this unexpected financial support. It will help to continue IPA's international activities to support Pompe patients and their families around the world.

For more information on the donation, please go to Tatlici Gercekleri

 

Kezia (15 years old) organized a marathon/fundraiser in honor of International Pompe Day and her sister’s 10-year anniversary of being on treatment. Kezia also shared her family’s story with a local newspaper to raise awareness of Pompe disease.