Hero Award for YeeSeng Lee, father of two Pompe girls and President of Malaysian LSD Association
Ir. YeeSeng Lee lives in Malaysia and is father of two lovely Pompe girls named Yen Ling and Wei Ling and one son who is unaffected. He works with the Malaysia Electricity Board ‘Tenaga Nasional Berhad’, but at the same time he is also the President of Malaysia Lysosomal Disease Association. It is an association set up for the benefit of all Lysosomal Storage Disease patients.
On 17th April 2014, he was given the ‘My Hero’ award by the Kuala Lumpur and Selangor Chinese Chamber of Commerce and Industry (KLSCCCI). He was chosen as he fights for the whole nation. Ir. YeeSeng Lee says: “It was a great honor for me to receive the “My Hero” award. Getting this award means so much to me, it is recognition of my hard work that came at the time I most needed it. I felt frustrated at times. After years of trying to get our Ministry of Health to review their existing Enzyme Replacement Therapy funding allocation, nothing had changed. Our government still refused to increase the old budget. Currently the doctors are treating 15 LSD patients with this limited budget.