Update from Genzyme on neoGAA Pompe clinical development program

“Genzyme, a Sanofi company, has a long history of involvement with Pompe disease and partnership with the community....
Author: Genzyme
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February 11, 2014

The Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014

February 10-14, 2014 in San Diego, USA The Lysosomal Disease Network’s 10th Annual WORLDSymposium™ 2014 This symposium is...
Author: Webmaster
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February 10, 2014

International Pompe Day

The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the...
Author: Webmaster
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February 8, 2014

About the International Pompe Day

The IPA is excited to announce that the international Pompe community has chosen April 15 as the annual...
Author: Webmaster
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February 7, 2014

The International GSD Conference in Heidelberg Germany

At November 28 – 30, 2013 the German Glycogen Storage Disease Association organised the International Glycogen Storage Diseases...
Author: Maryze
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December 19, 2013

Gaucher Association Denmark organised Pompe workshop for Danish Pompe patients

At December 7, 2013 Pompe patients from all over Denmark came together in Copenhagen at their first Pompe workshop....
Author: Maryze
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December 19, 2013

Carin van Gelder receives PhD on long-term outcome, dosing and the role of antibodies of ERT in classic infantile Pompe disease

On December 11, 2013 Dr. Carin van Gelder received her PhD on ‘Enzyme-replacement therapy in classic infantile Pompe disease – Long-term...
Author: Maryze
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December 19, 2013

Workshop on Pompe Disease for Pompe Patients in Denmark

December 7, 2013 in Copenhagen, Denmark Workshop on Pompe Disease for Pompe Patients in Copenhagen, Denmark During this workshop on...
Author: Maryze
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December 7, 2013

Amicus Therapeutics Strengthens Biologics Business Strategy / Callidus Biopharma Acquisition

Amicus Therapeutics (Nasdaq:FOLD), a biopharmaceutical company at the forefront of therapies for rare and orphan diseases, today announced...
Author: Amicus
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November 20, 2013

Deniz Güngör receives PhD on outcomes of the IPA / Erasmus MC Pompe Survey

On November 19, 2013 Dr. Deniz Güngör received her PhD on the outcomes of the IPA / Erasmus...
Author: Maryze
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November 19, 2013
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