Genzyme, a Sanofi company, announced today that it has received a Company Award from EURORDIS, the largest European...

The First Annual International Pompe Day will be held in 2014. To make International Pompe Day a success,...

The first order of business is to choose a date! We will be taking suggestions at internationalpompeday@worldpompe.org until...

This past Summer was a hot Summer for Pompe patients and everyone else involved in rare diseases in...

Amicus Therapeutics Announces Positive Results From All Four Cohorts in Phase 2 Chaperone-Enzyme Replacement Therapy (ERT) Co-Administration Study...

On the 30th November 2012, Helen Walker OAM (Member of the Order of Australia) passed away. Helen was board...

On the 30th November 2012, Helen Walker OAM (Member of the Order of Australia) passed away. Helen was board...

    November 18, 2012 in Johannesburg, South Africa  The Pedalling for Pompe Big Cycle the 94.7 Event...

Jamie and Allan Muir published a short film giving insight into different families that have a child with...

                                                                                                          October 27, 2012 in Sainte Foy Lès Lyon, France L’Association Francophone des Glycogénoses, Pompe Patient Meeting L’Association Francophone des...