UPF Pompe Patient & Family Meeting

May 21, 2011 in Seattle, USA                             UPF Pompe Patient & Family Meeting The United Pompe Foundation (UPF) has organised a Pompe...
Author: Webmaster
Archive
May 20, 2011

Maryze Schoneveld van der Linde Awarded Rare Disease Angel

Congratulations go to Maryze today on winning the award for the rare disease angel award in the Netherlands....
Author: IPA
Archive
May 15, 2011

Invitation to AMDA Conference and IPA AGM October 7 – 9, 2011, USA

Invitation to AMDA conference and IPA AGM October 7 – 9, 2011 in San Antonio, Texas (USA) Dear...
Author: IPA
Archive
May 10, 2011

Joint NEMA and BOKS Pompe Disease Day for patients and their families

May 7, 2011 in Groot-Bijgaarden, Belgium                                            Joint NEMA and BOKS Pompe Disease Day for patients and their families This...
Author: Webmaster
Archive
May 6, 2011

Update on Amicus’ Clinical Study: AT2220-ERT Co-Administration for the Treatment of Pompe Disease

In a press release, Amicus Therapeutics announce upcoming activities in the chaperones study: “Amicus has commenced activities for...
Author: Amicus
Archive
May 4, 2011

Sample article with image

Sample Image
Author: Webmaster
Archive
May 3, 2011

Summary Report of the 4th Steps Forward in Pompe Disease Symposium

November 19-20, 2010, London, UK Introduction This Symposium that further strengthened relations within the Pompe community was attended...
Author: IPA
Archive
May 3, 2011

Home adaptions for safety and accessibility

I created a document on home adaptions that I would like to share with others. I hope my experiences...
Author: Sharon Krueger
Archive
April 19, 2011

101 Hints to ‘Help-with-Ease’ for patients with Neuromuscular Disease

The 101 Hints to “Help-with-Ease” for Patients with Neuromuscular Disease was written by the Muscular Dystrophy Association in...
Author: Sharon Krueger
Archive
April 19, 2011

101 Hints to ‘Help-with-Ease’ for patients with Neuromuscular Disease

The 101 Hints to “Help-with-Ease” for Patients with Neuromuscular Disease was written by the Muscular Dystrophy Association in...
Author:
Archive
April 19, 2011
1 … 24 25 26 27 28 … 38