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IPA on Facebook
Since today, the IPA can be found on Facebook too. To spread the word, go to www.facebook.com/profile.php?id=100064837952735 and...
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April 19, 2011
Annual Meeting of the German Group
April 15-17, 2011 in Duderstadt, Germany Annual Meeting of Selbsthilfegruppe Glykogenose Deutschland e.V.(German Patient Association) www.glykogenose.de
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April 14, 2011
Do I have to die because I’m too expensive for the health system?
Muss ich sterben, weil ich der Krankenkasse zu teuer bin? Pompe in the Press (Blick.ch, Switzerland): (in German)...
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April 9, 2011
For female wheelchair users: a device to urinate normally without transfer
—Shipping to Dutch residents only => article unpublished— For female wheelchair users, who can no longer stand, having...
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Archive
April 7, 2011
Situation of Pompe patients in Japan after earthquake and Tsunami
‘Pompe House’, our IPA member from Japan has informed the IPA on the situation of Pompe patients after...
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IPA
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April 6, 2011
IPA Communications Coordinator
Over the last few years the IPA has communicated to national patient organisations through private emails and newsletters...
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IPA
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April 6, 2011
— HOW TO ADD EVENTS —
Preselect Section:IPA and Category:Events or make sure that the proper section/category is selected in the article view. Enter...
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April 5, 2011
EU Clinical Trials Register Now Online
On 22th March 2011 the EU announced that a new resource for information on clinical trials is now...
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IPA
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March 23, 2011
Privacy
Your visit will be analyzed for statistical purposes. We respect your privacy by truncating the IP address of...
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March 22, 2011
Privacy2
Note that this cookie has a lifetime of 1 week, so you have to renew it when you...
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March 22, 2011
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