Cover-meeting

SSIEM Annual Symposium

The SSIEM (Society for the Study of Inborn Errors of Metabolism) Annual Symposium was held in Rotterdam, the...
Author: IPA
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November 23, 2019

Therapy for Pompe Disease now refunded in Singapore

November 3, 2019, The Straits Times Rare Disease Fund now covers Pompe disease, a rare inherited neuromuscular disorder...
Author: The Straits Times, Singapore
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November 4, 2019

The role of patient advocacy organizations in shaping medical research: the Pompe model

The IPA has authored an article titled “The role of patient advocacy organizations in shaping medical research: the...
Author: IPA
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May 27, 2019

Ride With Hope

Ride With Hope is a campaign organized by the MLDA, Malaysia Lysosomal Diseases Association, a member of the...
Author: Fabio Di Pietro
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April 25, 2019

Moving On With Pompe!

April 15, 2019 Today is our 6th International Pompe Day! The goal of International Pompe Day is to...
Author: IPA
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April 15, 2019

Moving On with Pompe!

Moving On with Pompe! April 15, 2019 will be our 6th International Pompe Day! The IPA believes that...
Author: IPA
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February 26, 2019

Moving On with Pompe! (2)

Moving On with Pompe! April 15, 2019 will be our 6th International Pompe Day! The IPA believes that...
Author: IPA
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February 26, 2019

Privacy Policy

It is the policy of the International Pompe Association (IPA), as Data Controller, to protect the security and...
Author: Webmaster
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February 25, 2019

Overview of Clinical Trials

There are multiple clinical trials that are currently underway for Pompe disease. Because there are so many different...
Author: IPA
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February 24, 2019
News - clinical trial - cover

Amicus Therapeutics Announces First Patient Dosed in Phase 3 PROPEL Study

CRANBURY, N.J., Dec. 20, 2018 (GLOBE NEWSWIRE) —  Amicus Therapeutics (Nasdaq: FOLD), a global biotechnology company focused on...
Author: Amicus
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December 20, 2018
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