My Life with Pompe: Overcoming the Challenges and Living Life

By Tiffany House I was diagnosed with Pompe disease when I was 11. It shocks me sometimes when...
Author: Tiffany House
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April 14, 2017

Be creative!

Your tips and tricks could be displayed here…
Author: Webmaster
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April 14, 2017

2017 Talent of Pompe (ToP) Awards

To celebrate International Pompe Day on 15th April 2017, IPA has expanded the annual art contest to include...
Author: Webmaster
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March 5, 2017

Valerion Therapeutics Demonstrates a New Mechanism for Treating Pompe Disease

Concord, MA– March 3, 2017– Valerion Therapeutics announced today that it has developed a fusion protein, VAL-1221, which...
Author: Valerion
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March 4, 2017

Program Update for Phase 1/2 Pompe Study by Amicus Therapeutics

CRANBURY, N.J., March 01, 2017 (GLOBE NEWSWIRE) — Amicus Therapeutics (Nasdaq:FOLD)… provided program updates. John F. Crowley, Chairman...
Author: Amicus
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March 2, 2017

Amicus Therapeutics Presents Additional Positive Preliminary Phase 1/2 Data

CRANBURY, N.J. and SAN DIEGO, Feb. 15, 2017 (GLOBE NEWSWIRE) — Amicus Therapeutics (Nasdaq:FOLD)… today presented additional positive...
Author: Amicus
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February 16, 2017

Amicus Therapeutics Presents Scientific Findings and Preclinical Data for Pompe Program

CRANBURY, N.J. and SAN DIEGO, Feb. 15, 2017 (GLOBE NEWSWIRE) —  Amicus Therapeutics (Nasdaq:FOLD)… today presented new scientific...
Author: Amicus
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February 16, 2017

Amicus Therapeutics Announces Positive Preliminary Data from Phase 1/2 Study of Novel Treatment Paradigm for Pompe Disease

Amicus Therapeutics Announces Positive Preliminary Data from Phase 1/2 Study of  Novel Treatment Paradigm for Pompe Disease CRANBURY,...
Author: Amicus
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December 8, 2016

10 Years of Enzyme Replacement Therapy

At the “Steps Forward in Pompe Disease” 8th European Symposium on November 11-12, 2016 in Amsterdam (NL), organised by...
Author: IPA
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November 12, 2016

NeoGAA Phase 3 Trial Begins

Sanofi Genzyme Begins Pivotal Phase 3 Trial of NeoGAA Investigational Second-Generation Therapy for Pompe Disease In a press...
Author: Genzyme
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November 4, 2016
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