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About Pompe Disease
Symptoms
Diagnosis
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Resources
Patient-Focused Publications
Patients Helping Patients
Research Papers
Publications for Physicians
Testimonials
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Living with LOPD during your teenage years, or caring for a teenager – could you be part of our virtual CAB?
Are you aged between 10 – 17 years old? Or are you a parent or carer of somebody...
Author:
IPA
News
May 3, 2024
International Pompe Day: 15 April 2024 – Every Move Counts
Videos from the Pompe community illustrating how strength and resilience are gained through friendship.
Author:
IPA
Events
April 12, 2024
Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union
Amicus Therapeutics announces that the European Commission (EC) has granted approval for Opfolda® (miglustat), an enzyme stabilizer of cipaglucosidase...
Author:
IPA
News
June 28, 2023
Patient Registries for Pompe Disease Survey
The IPA invites you to share your perspective about Patient Registries for Pompe disease.
Author:
IPA
News
June 4, 2023
2023: Every Move Counts
The IPA is excited to announce its plans for International Pompe Day. This year, we are focusing on...
Author:
IPA
International Pompe Day
May 17, 2023
