Some Pompe patients need G-tube feeding to be able to get enough nutrition. This may be needed in...

For several Pompe patients it can become difficult or impossible to turn around in bed without supportive equipment. At...

Luckily not all Pompe patients have to use G-tube feeding, but for those who have this information might...

In the Netherlands all Pompe patients receiving treatment with enzyme replacement therapy received a medical letter from their...

The International Ventilator Users Network (IVUN) has a developed the Home Ventilator Guide compiled by Judith R. Fischer....

Many of us know the problem, cold feet… and not just cold feet, but the one that colours...

I do travel a lot and that means that I often use my manual wheelchair. When I don’t...

Many wheelchair users know that it is often difficult to wash ones hair when travelling. Even when one uses...

For several Pompe patients it can become difficult or impossible to turn around in bed independently. This also happened to me....

For several Pompe patients it can become difficult or impossible to turn around in bed independently. This also happened to me....