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About Pompe Disease
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Born Fighter 1 of 2
After 6 years of ERT, my daughter Wei Ling and Yen Ling are both now standard 2 and...
Author:
Mother of Wei Ling
Video Testimonials
January 4, 2012
Wei Ling
Life is so precious, if you are persistent and fight for every single chance you have, nothing is...
Author:
Mother of Wei Ling
Video Testimonials
January 3, 2012
Jamie
It has been 6 years since my Mother wrote about my life so far and how we as...
Author:
Jamie Muir
Testimonials
December 22, 2011
Juan
I was born on Nov. 28, 1977 to Vic and Cynthia. Two of the most loving parents in...
Author:
Juan Magdaraog
Testimonials
December 8, 2011
Maryze
I was born on August the 30th 1970. I had feeding problems from the beginning. I wasn’t able...
Author:
Maryze Schoneveld van der Linde
Testimonials
December 8, 2011
Benthe
Benthe was born in Hengelo hospital on 2nd November 2004. On first appearance everything seemed normal. She was...
Author:
Jeroen and Mirjam (Benthe's Parents)
Testimonials
November 29, 2011
Helen († 30 Nov 2012)
“A short note that needs little explanation: I was diagnosed in 1990 after 50 years of searching for...
Author:
Helen Walker
Testimonials
November 29, 2011
Johan
My name is Johan Bakker (1958). I live in the Netherlands. Until 1998 at the age of 30,...
Author:
Johan Bakker
Testimonials
November 28, 2011
Mike
While living in the long-term care facility, I heard from a friend of mine about a device which...
Author:
Mike Stanzione
Testimonials
November 8, 2011
Azaria
Azaria coped very well during the first year at primary school, spending one day each fortnight at the...
Author:
Jo (Azaria's Mother)
Testimonials
October 20, 2011
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