News

AllArchiveNews

Dare to Dream

Professor Ans van der Ploeg, MD, PhD, is retiring.
Author: Annic Kolbrück
News
July 1, 2025

In Memoriam: Tiffany House

Tiffany was a force. A driving energy connecting patients, scientists, clinicians, and industry—always pushing for better care, stronger research, and...
Author: IPA
News
June 9, 2025

In Memory of Tiffany House

It is with hearts filled with grief that we share with you Tiffany House has passed away, May 26, 2025.
Author: IPA
News
May 26, 2025

In Memory of Maryze Schoneveld van der Linde

Maryze passed away peacefully on Wednesday, May 14. Maryze worked tirelessly for patients around the world.
Author: Tiffany House
News
May 18, 2025

International Pompe Day: 15 April 2025 – Run, Walk or Roll

Run, Walk or Roll for Pompe disease on International Pompe Day, April 15, 2025!
Author: IPA
Events
April 1, 2025

Spark Therapeutics Stops Its Pompe Program

The IPA has been informed that Spark Therapeutics has realigned its portfolio and made the difficult decision to stop its...
Author: IPA
News
July 13, 2024
Cover - Approval

Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union

Amicus Therapeutics announces that the European Commission (EC) has granted approval for Opfolda® (miglustat), an enzyme stabilizer of cipaglucosidase alfa, an...
Author: IPA
News
June 28, 2023

Patient Registries for Pompe Disease Survey

The IPA invites you to share your perspective about Patient Registries for Pompe disease.
Author: IPA
News
June 4, 2023
International Pompe Day-2023

2023: Every Move Counts

The IPA is excited to announce its plans for International Pompe Day. This year, we are focusing on raising awareness...
Author: IPA
International Pompe Day
May 17, 2023

Pompe Patients Covid Survey

Over the last 2 years, it is clear that the COVID-19 pandemic has had wide reaching effects on people all...
Author: IPA
Archive
September 19, 2022
International Pompe Day 2022

International Pompe Day 15 April 2022

International Pompe Voices   For International Pompe Day (IPD) we are asking people in the global Pompe community to record...
Author: IPA
Archive
March 21, 2022
Cover - Ukraine

International Pompe Association supports Ukrainian Pompe patients

Author: Maryze Schoneveld van der Linde, Volunteer, Communications Coordinator, International Pompe Association Date: March 19, 2022 On February 24, 2022, at...
Author: IPA
Archive
March 20, 2022
Load More