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About Pompe Disease
Symptoms
Diagnosis
Pompe Registry
Resources
Patient-Focused Publications
Patients Helping Patients
Research Papers
Publications for Physicians
Testimonials
International Pompe Day
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About the IPA
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IPA Community Advisory Board
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Publications for Physicians
Publications for Physicians
A Dutch guideline for the treatment of scoliosis in neuromuscular disorders
Long-Term Intravenous Treatment of Pompe Disease With Recombinant Human alpha-Glucosidase From Milk
Physician's Guide to Pompe
Public support for neonatal screening for Pompe disease, a broad-phenotype condition
Results of the LOTS (clinical trial)
Recent Articles
Spark Therapeutics Stops Its Pompe Program
Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union
Patient Registries for Pompe Disease Survey
2023: Every Move Counts
Rare Disease Day: 29 February 2024
Events
International Pompe Day: 15 April 2024 – Every Move Counts
