The IPA is excited to announce that the international Pompe community has chosen April 15, 2014 as the first annual International Pompe Day!
The goal of International Pompe Day is to foster international awareness of Pompe Disease and the slogan for our day is "Together¬†We¬†Are¬†Strong". The IPA encourages everyone to become involved in our inaugural International Pompe Day to show how STRONG our Community is ‚Äď both in numbers and in passion!
There are several ways that you can participate!
Upload a photo to the International Pompe Day website.
Participate in the International Pompe Day Art Contest!
Become a Supporter!
Buy Your Official International Pompe Day Merchandise!
"Translational aspects are key elements of the rare disease field, and Pompe disease plays a major role model for the entire rare disease community. Linking international resources, researchers, clinicians, public money and industry together will provide superior treatment to all of our patients with harmonized standards of care around the world. I strongly support any networking that includes the national and international Pompe patient organizations. As we made great steps forward during the past decade, let¬īs celebrate the first annual International Pompe Day on April 15, 2014!"
Professor Benedikt Schoser
"For the past twenty five years, I have studied the biochemistry, molecular genetics, and cell biology of Pompe disease. My work days are similar to those of most scientists - long hours, intellectual and experimental challenges that are both addictive and frustrating, tedious manuscript preparation, and worries concerning research funding. So what, you might ask, keeps me coming back to my laboratory each day? Hackneyed as it may sound, I have to disclose that it is the infusion of incentive to find better treatments for Pompe disease that I experience following my attendance at meetings that include patient presentations. No scientific talk or high of discovery so deeply inspires and motivates."
Dr. Nina Raben
"Duke has a long and dedicated history to Pompe research. To make great strides in the field and improve the lives of our patients, we need to build awareness and create partnerships among the researchers, patient organizations and industry. We are very excited to support and be a part of the first annual international Pompe day as we celebrate Together We Are Strong!"
Priya S. Kishnani, MD, MB BS
The 2014 International Pompe Day Art Contest is open to all Pompe Patients and family members of Pompe Patients. There are four Categories of Entries: Ages 0-5; 5-10; 10-18; 18+.
The International Pompe Association (IPA) asks participants to create an art piece to highlight our motto: "Together We Are Strong." Participants should think about what this motto means to them on a personal, community, national, or international level.
The 2014 International Pompe Day Art Contest is sponsored by the International Pompe Association (IPA). Contest prizes are made possible through generous donations. A list of supports is available on the International Pompe Day website.
Contest Eligibility Requirements
Qualified Participants are allowed to submit an art piece which may be represented in two-dimensions to be entered in the Art Contest. Participants are encouraged to use their creativity and create art pieces in any format they choose (including, but not limited to, drawings, paintings, films, photography, essays, comics, collages, etc). Each submission must be accompanied by a signed Contest Entry Form. All Qualified Participants under the age of 18 must have their parent or legal guardian sign the Parental Permission Release Form. All participants must agree to the republications, reproduction, or any other use of the submissions and the likenesses, personals, and voices contained therein by the IPA. All participants must certify that the submission is the original work of Qualified Participant. Submissions are subject to verification for compliance with these Rules.
Steps to Enter
Qualified Participants must:
Conditions of Participation