IPA - International Pompe Association

Publications

Physician's Guide to Pompe
This is a brochure created by the IPA and Genzyme to aid doctors in their understanding of Pompe Disease.

Flying with a Ventilator in the US
An excellent resource for patients in the US, or for those traveling to the US who are dependent on artificial ventilation.

Needle Fear
This is an brochure compiled by Genzyme in an effort to aid patients in overcoming their fear of needles, an integral part of the Myozyme infusion process.

Pompe Connections Brochure

Pompe Connections Treatment Edition

Research Publications
A partial compilation of the most relevant Pompe's Disease research publications.