Physiotherapy

Introduction (tbd) Pompe Disease Exercises Intro: tbd Link to YouTube Playlist (external link)
Author: Webmaster
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January 22, 2015

2015 International Pompe Day Art Contest

Official Rules Qualified Participants The 2015 International Pompe Day Art Contest is open to all Pompe Patients and...
Author: Webmaster
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January 22, 2015

International Fundraiser, Art Contest, and Photo Gallery Planned for Second Annual International Pompe Day!

For Immediate Release January 21, 2015 The International Pompe Association (IPA) is excited to announce our plan to...
Author: IPA
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January 21, 2015

A Wonderful Fund Raising ‘Every Life Counts’ Charity Dinner Graced by Negeri Sembilan’s King and Queen

On the last 6th December, 2014, Malaysia Lysosomal Diseases Association (MLDA) had successfully organised the 'Every Life Counts' Charity...
Author: IPA
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January 21, 2015

Duke Pompe Clinic and Conference for Adult Onset Pompe Patients

Clinic Dates: Thursday April 9 & Friday April 10 2015 Conference Date: Saturday, April 11, 2015 Location: Duke...
Author: IPA
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January 19, 2015

BioMarin Update to Pompe Disease Clinical Programme

BioMarin are pausing further recruitment for their BMN-701 clinical trial and have provided this programme update: January 2015...
Author: BioMarin
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January 10, 2015

IPA Statement and Clarification on Potential New Production Method Mentioned in Dutch Interview

Press Release: For Immediate Release December 16, 2014 As many of you are probably aware, on December 13,...
Author: IPA
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December 16, 2014

Frequently Asked Questions (FAQ)

{slider Instructions|grey} Please click on any FAQ item to see the answers. {slider What is the purpose of...
Author: Webmaster
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November 30, 2014

About this Forum / How to Register

About the IPA’s Community Forum The IPA’s Community Forum is a private forum for individual patients, family members,...
Author: Webmaster
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November 30, 2014

Australian Pompe’s Association held its first National patient and family support forum in Melbourne

On the 17th – 19th October the Australian Pompe's Association held its first National patient and family support forum...
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November 26, 2014
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