Rotterdam 2012

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Author: Webmaster
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October 27, 2014

Australian Pompe Association Meeting in Melbourne

October 18 – 19, 2014 in Melbourne, Australia  ‘The Australian Pompe’s Association Inaugural Patient and Friend’s Forum’ Program details will...
Author: Maryze
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October 18, 2014

AGSD-UK Annual Conference 2014

October 18-19, 2014 in Wychwood Park, Weston, Crewe, Cheshire, CW2 5GP, United Kingdom The AGSD-UK offers several workshops. Two of...
Author: Maryze
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October 18, 2014

ENMC workshop on Pompe Disease

Formation of a European network to develop a European data sharing model and treatment guidelines for Pompe disease...
Author: IPA
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October 6, 2014

International Pompe Day Commemorative Book Now Available!

The Acid Maltase Deficiency Association (AMDA) in the USA, one of the members of the IPA, took the...
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October 3, 2014

IPA’s Pompe M-PowerPilot Project Recipient of Genzyme’s 4th Annual PAL Award

Press Release – For Immediate Release October 1, 2014 The International Pompe Association (IPA) is excited to announce...
Author: IPA
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October 1, 2014

Genzyme Announces Winners of Patient Advocacy Leadership (PAL) Awards

“Genzyme, a Sanofi company (EURONEXT: SAN and NYSE: SNY), today announced the recipients of the 2014 Genzyme Patient...
Author: Genzyme
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October 1, 2014

Donation Received from Turkish Charity Fund

Mr. Uğur Tatlıcı, CEO of UNT Holding and son of the late Mr. Mehmet Salih Tatlıcı  (1931 –...
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September 24, 2014

World Fair – Lysosomal Storage Disease Mini World Symposium

September 20, 2014 in Bloomington, Minnesota, USA World Fair – Lysosomal Storage Disease Mini World Symposium Discuss care and...
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September 20, 2014

Expression of Hope III

Genzyme’s program Expression of Hope III is open for submissions Over the years Genzyme has organised the Expression...
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September 9, 2014
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