International Pompe Day 2014

For Immediate Release: April 9, 2014 Download Press Release (PDF 271 kB) The IPA is excited to announce...
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April 9, 2014

Family Day for Pompe patients and their families in Denmark

April 5th, 2014 in Kolding, Denmark Danish Pompe patients and the Danish Gaucher Association organise a Family Day for everyone involved in Pompe...
Author: Maryze
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April 5, 2014

Soccer Team RCD Espanyol supports International Pompe Day

Soccer Team RCD Espanyol supports International Pompe Day At April 15 it is International Pompe Day and to...
Author: Maryze
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March 23, 2014

North Carolina University raises money with MDA Muscle Walk for research on Pompe Disease

  March 15th, 2014 Durham, North Carolina, USA MDA MUSCLE WALK to raise money to support research on Pompe...
Author: Maryze
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March 15, 2014

Colombian LSD Association (ACOPEL) participates in International Pompe Day

Asociación Colombiana de Pacientes con Enfermedades de Depósito Liposomal (ACOPEL) decided to organise a special event to gather...
Author: Maryze
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March 12, 2014

Amicus Therapeutics Announces Full-Year 2013 Financial Results and Corporate Updates

Amicus Therapeutics Announces Full-Year 2013 Financial Results and Corporate Updates – Executing 3-in-3 Strategy to Advance 3 Next-Generation...
Author: Amicus
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March 3, 2014

Testimonials

"Translational aspects are key elements of the rare disease field, and Pompe disease plays a major role model...
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March 2, 2014

Pompe Workshop at 3rd National Conference on Rare Diseases in Croatia

27 – 28 February 2014, Pompe Workshop at 3rd National Conference on Rare Diseases in Zagreb, Croatia  At...
Author: Maryze
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February 27, 2014

Solidarity Meeting for Patients of the Greek LSD Association

February 23, 2014 in Gerakas Attica, Greece Solidarity Meeting of the Greek Lysosomal Storage Diseases Association Location: Office...
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February 23, 2014

Serbian Blog on Invisible People

Serbian Blog on Invisible People   Davor Duboka, President of the National Organisation for Rare Diseases of Serbia (NORBS) started his...
Author: Maryze
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February 19, 2014
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