For Immediate Release: April 9, 2014 Download Press Release (PDF 271 kB) The IPA is excited to announce...
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April 9, 2014
April 5th, 2014 in Kolding, Denmark Danish Pompe patients and the Danish Gaucher Association organise a Family Day for everyone involved in Pompe...
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April 5, 2014
Soccer Team RCD Espanyol supports International Pompe Day At April 15 it is International Pompe Day and to...
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March 23, 2014
  March 15th, 2014 Durham, North Carolina, USA MDA MUSCLE WALK to raise money to support research on Pompe...
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March 15, 2014
Asociación Colombiana de Pacientes con Enfermedades de Depósito Liposomal (ACOPEL) decided to organise a special event to gather...
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March 12, 2014
Amicus Therapeutics Announces Full-Year 2013 Financial Results and Corporate Updates – Executing 3-in-3 Strategy to Advance 3 Next-Generation...
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March 3, 2014
"Translational aspects are key elements of the rare disease field, and Pompe disease plays a major role model...
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March 2, 2014
27 – 28 February 2014, Pompe Workshop at 3rd National Conference on Rare Diseases in Zagreb, Croatia  At...
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February 27, 2014
February 23, 2014 in Gerakas Attica, Greece Solidarity Meeting of the Greek Lysosomal Storage Diseases Association Location: Office...
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February 23, 2014
Serbian Blog on Invisible People   Davor Duboka, President of the National Organisation for Rare Diseases of Serbia (NORBS) started his...
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February 19, 2014
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