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International Pompe Day 2014
For Immediate Release: April 9, 2014 Download Press Release (PDF 271 kB) The IPA is excited to announce...
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Webmaster
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April 9, 2014
Family Day for Pompe patients and their families in Denmark
April 5th, 2014 in Kolding, Denmark Danish Pompe patients and the Danish Gaucher Association organise a Family Day for everyone involved in Pompe...
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Maryze
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April 5, 2014
Soccer Team RCD Espanyol supports International Pompe Day
Soccer Team RCD Espanyol supports International Pompe Day At April 15 it is International Pompe Day and to...
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Maryze
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March 23, 2014
North Carolina University raises money with MDA Muscle Walk for research on Pompe Disease
March 15th, 2014 Durham, North Carolina, USA MDA MUSCLE WALK to raise money to support research on Pompe...
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Maryze
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March 15, 2014
Colombian LSD Association (ACOPEL) participates in International Pompe Day
Asociación Colombiana de Pacientes con Enfermedades de Depósito Liposomal (ACOPEL) decided to organise a special event to gather...
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Maryze
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March 12, 2014
Amicus Therapeutics Announces Full-Year 2013 Financial Results and Corporate Updates
Amicus Therapeutics Announces Full-Year 2013 Financial Results and Corporate Updates – Executing 3-in-3 Strategy to Advance 3 Next-Generation...
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Amicus
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March 3, 2014
Testimonials
"Translational aspects are key elements of the rare disease field, and Pompe disease plays a major role model...
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March 2, 2014
Pompe Workshop at 3rd National Conference on Rare Diseases in Croatia
27 – 28 February 2014, Pompe Workshop at 3rd National Conference on Rare Diseases in Zagreb, Croatia At...
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Maryze
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February 27, 2014
Solidarity Meeting for Patients of the Greek LSD Association
February 23, 2014 in Gerakas Attica, Greece Solidarity Meeting of the Greek Lysosomal Storage Diseases Association Location: Office...
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February 23, 2014
Serbian Blog on Invisible People
Serbian Blog on Invisible People Davor Duboka, President of the National Organisation for Rare Diseases of Serbia (NORBS) started his...
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Maryze
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February 19, 2014
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