Now Available: Photos of the 2011 Conference in San Antonio

We added a gallery to the IPA website where you can display and download photos of the International...
Author: AMDA
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February 2, 2012

Early Announcement: International GSD Conference 2013

October 3-5, 2013 in Heidelberg, Germany For the first time, an international conference will bring together liver and...
Author: IPA
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January 18, 2012

Pompe Community Update (US Only)

As some of you are probably aware, Genzyme has announced that, due to production and supply constraints, starting...
Author: AMDA
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January 17, 2012

First Patient Infused in Amicus’ Co-administration Clinical Study

Amicus Therapeutics announced that the first patient has been infused in the AT2220-010 Phase 2 co-administration clinical study...
Author: Amicus
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December 1, 2011

Patients Active to Increase Awareness on Pompe Disease in Asia

In the past years a lot has changed in Asia when it comes to awareness regarding Pompe disease....
Author: Maryze
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November 8, 2011

Patiententreffen 2011 Selbsthilfeorganisation Morbus Pompe Osterreich

October 28 – 29, 2011 in Vienna, Austria  Annual Patient Meeting of Pompe Patients in Austria. The Selbsthilfeorganisation...
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October 28, 2011

AGSD-UK Conference

October 22 – 23rd, 2011 in Telford, The United Kingdom AGSD-UK Conference The AGSD-UK has organised its annual...
Author: Webmaster
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October 21, 2011

Hearing in adults with Pompe disease

Van der Beek and others have studied the hearing loss in adult patients with Pompe disease. The results...
Author: IPA
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October 15, 2011

Myozyme reimbursed in Switzerland

Good news for Pompe patients in Switzerland: a Swiss newspaper (Basler Zeitung, October 10, 2011) reports that Myozyme...
Author: IPA
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October 10, 2011

AMDA / IPA 2011 Patient and Scientific Conference USA

October 7-9, 2011 in San Antonio, Texas, USA, at the Holiday Inn Riverwalk AMDA / IPA 2011 Patient and Scientific Conference...
Author: Tiffany House
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October 6, 2011
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