The IPA has issued the following press release in regard to the film, Extraordinary Measures. (Download PDF, 393...

The International Pompe Association (IPA) encourages patients to participate in the IPA/Erasmus MC Pompe Survey. The survey is...

Genzyme would like to provide an update to the US Pompe community about the status of the Alglucosidase...

Guidelines from Erasmus Medical Center, the Netherlands As a guideline we recommend that all patients with Pompe disease...

CRANBURY, N.J., Sept 30, 2009 —Amicus Therapeutics today announced it plans to initiate a Phase 1 study of...

Background Throughout the second half of 2008 board members of the International Pompe Association worked closely with the...

Background In February 2009, Genzyme received a Complete Response letter from the FDA in regards to the Biologics...

CAMBRIDGE, Mass. – Genzyme Corporation (Nasdaq: GENZ) announced today that it has submitted the final documentation to address...

You will no doubt have heard the wonderful news that Myozyme from the Belgian production facility has been...

Includes information concerning the supply situation and the FDA’s decision on Lumizyme. To read program update, please click...