Patient Support Group Collaboration with Industry In the support of patients and their families living with rare diseases,...

July 15, 2012 at Oregon Health & Science University, Portland, OR, USA United Pompe Foundation (UPF) Portland Pompe Conference 2012...

June 30, 2012 at The Westin Los Angeles Airport, Los Angeles, California, USA United Pompe Foundation (UPF) LA Area Pompe Conference...

Saturday, June 29th, 2013 at Marina del Rey Marriott, California, USA United Pompe Foundation (UPF), University of California, Irvine present:             Pompe Patient and...

    June 12, 2012 in Johannesburg, South Africa  The Pedalling for Pompe Meet and Greet The Pedalling4Pompe...

June 1-3, 2012, in Burgos, Spain III. International Congress on GSDs As every year, we have the pleasure...

It’s been over two weeks now since we received the sad news that Bet had died. I’ve been...

On May 13, 2012 BioMarin provided the IPA with the following update on their clinical trial investigating the...

Several publications have been released on methods to detect Pompe patients who were previously suspected of having another...

April 20-21, 2012 at Duke University Medical Center, Durham, NC, USA United Pompe Foundation (UPF) Pompe Social & Patient Meeting The United...