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2014: Gallery (Uploaded Photos)
2014: Gallery (Uploaded Photos)
International Pompe Day
International Pompe Day: 15 April 2024 – Every Move Counts
2023: Every Move Counts
2022: International Pompe Voices
2021: Pompe Around The World
Hope For The Future
Recent Articles
Spark Therapeutics Stops Its Pompe Program
Amicus Therapeutics Announces Approval and Launch of New Pompe Disease Therapy in the European Union
Patient Registries for Pompe Disease Survey
2023: Every Move Counts
Rare Disease Day: 29 February 2024
Events
International Pompe Day: 15 April 2024 – Every Move Counts